Antalya\u2019da ya\u015fayan G\u00f6khan ve Yasemin Kaya \u00e7ifti, ge\u00e7en y\u0131l 15 Aral\u0131k’ta d\u00fcnyaya gelen k\u0131zlar\u0131 Arven’in hen\u00fcz 2 haftal\u0131kken topu\u011fundan al\u0131nan kan \u00f6rne\u011fiyle SMA Tip 1 hastas\u0131 oldu\u011funu \u00f6\u011frendi. \u015eu an 3 ayl\u0131k olan Arven’in, 6 ayl\u0131k olmadan yurt d\u0131\u015f\u0131nda 1 milyon 822 bin dolarl\u0131k tedaviye ula\u015fmas\u0131 gerekiyor. Kaya \u00e7ifti, SMA hastas\u0131 k\u0131zlar\u0131n\u0131n iyile\u015fmesi i\u00e7in valilik onayl\u0131 kampanya ba\u015flatt\u0131. \u015eu an 1500 g\u00f6n\u00fcll\u00fc, aktif olarak kampanyaya destek veriyor.<\/p>\n
‘\u0130LACI ALIP, \u0130Y\u0130LE\u015eEN \u00c7OCUK \u00c7OK FAZLA’<\/p>\n
Antalya B\u00fcy\u00fck\u015fehir Belediyesi’nde tekniker olarak \u00e7al\u0131\u015fan G\u00f6khan Kaya, “K\u0131z\u0131m\u0131n 10 g\u00fcnl\u00fckken topu\u011fundan al\u0131nan kan \u00f6rne\u011fiyle SMA Tip 1 hastas\u0131 oldu\u011funu \u00f6\u011frendik. Bu s\u00fcre\u00e7 bizim i\u00e7in \u00e7ok zordu. \u00c7\u00fcnk\u00fc bu hastal\u0131\u011f\u0131n tedavisi i\u00e7in kullan\u0131lan ila\u00e7 \u00fclkemizde bulunmuyor. Biz de gerekli izinleri ald\u0131ktan sonra kampanya s\u00fcrecine girdik. Hastal\u0131\u011f\u0131n \u00e7ok \u015f\u00fck\u00fcr ki hen\u00fcz belirtilerini ya\u015fam\u0131yoruz. Kas kay\u0131plar\u0131m\u0131z yok. Bundan dolay\u0131 umudumuz y\u00fcksek. D\u00fcnyan\u0131n \u00e7e\u015fitli \u00fclkelerinde bu hastal\u0131\u011f\u0131n tedavisi yap\u0131l\u0131yor. \u0130lac\u0131n paras\u0131, g\u00fcn\u00fcm\u00fcz kuruyla 1 milyon 822 bin dolar. Biz belirli standartlarda ya\u015fayan insanlar\u0131z, memuruz. Bu ilac\u0131n fiyat\u0131n\u0131 kar\u015f\u0131layabilecek durumda de\u011filiz. Bu nedenle kampanya yapmak durumunda kald\u0131k. T\u00fcrkiye’de ilac\u0131n\u0131 al\u0131p, iyile\u015fen \u00e7ocuk say\u0131s\u0131 \u00e7ok fazla, bu y\u00fczden kampanyay\u0131 ba\u015flatt\u0131k. Bize destek veren herkese te\u015fekk\u00fcr ederiz” diye konu\u015ftu.<\/p>\n
‘HASTALIK \u00c7OK HIZLI \u0130LERL\u0130YOR\u2019<\/p>\n
Akdeniz \u00dcniversitesi Hastanesi’nde hem\u015fire olarak g\u00f6rev yapan Yasemin Kaya ise “Arven bizim ikinci bebe\u011fimiz. Bu s\u00fcre\u00e7 bizim i\u00e7in ger\u00e7ekten \u00e7ok zorlu. O telefon bize geldi\u011finde \u00f6yle zor bir s\u00fcrece girdik ki anlatmak m\u00fcmk\u00fcn de\u011fil. Arven i\u00e7in elimizden ne geliyorsa yapmak zorunday\u0131z. Bu a\u015famada neler yapabilece\u011fimizi ara\u015ft\u0131rmaya ba\u015flad\u0131k. \u0130la\u00e7lar\u0131n\u0131 ara\u015ft\u0131rd\u0131k, tedavisine ba\u015flad\u0131k. Umutluyuz \u00e7\u00fcnk\u00fc Arven bu ilac\u0131 6 ayl\u0131k olmadan \u00f6nce al\u0131rsa ya\u015f\u0131tlar\u0131ndan hi\u00e7bir fark\u0131 olmayacak, onlar gibi ko\u015fup oynayabilecek. Onlar gibi parkta e\u011flenebilecek, abisiyle oynayabilecek. Bizim i\u00e7in s\u00fcre\u00e7 \u00e7ok \u00f6nemli, \u00e7\u00fcnk\u00fc bu hastal\u0131k \u00e7ok h\u0131zl\u0131 ilerliyor. Biz de h\u0131zl\u0131 ba\u015flad\u0131k, dik durmaya \u00e7al\u0131\u015f\u0131yoruz. Bu zamana kadar \u00e7ok fazla ki\u015finin deste\u011fi geldi, onlara \u00e7ok te\u015fekk\u00fcr ediyoruz. \u00c7ok y\u00fckl\u00fc bir miktar oldu\u011fu i\u00e7in tek ba\u015f\u0131m\u0131za yeti\u015femiyoruz. Hep birlikte daha h\u0131zl\u0131 oluruz ve onu ilac\u0131na kavu\u015fturabiliriz. Umar\u0131m b\u00f6yle olur, buradan herkese seslenmek istiyorum. L\u00fctfen Arven’i bir an \u00f6nce ilac\u0131na kavu\u015ftural\u0131m, ya\u015f\u0131tlar\u0131ndan fark\u0131 olmas\u0131n” dedi.<\/p>\n
Kaynak: www.kanalv.com.tr Haber Sitesinden Al\u0131nm\u0131\u015ft\u0131r.<\/p>","protected":false},"excerpt":{"rendered":"
Antalya\u2019da ya\u015fayan G\u00f6khan ve Yasemin Kaya \u00e7ifti, ge\u00e7en y\u0131l 15 Aral\u0131k’ta d\u00fcnyaya gelen k\u0131zlar\u0131 Arven’in hen\u00fcz 2 haftal\u0131kken topu\u011fundan al\u0131nan kan \u00f6rne\u011fiyle SMA Tip 1 hastas\u0131 oldu\u011funu \u00f6\u011frendi. \u015eu an 3 ayl\u0131k olan Arven’in, 6 ayl\u0131k olmadan yurt d\u0131\u015f\u0131nda 1 milyon 822 bin dolarl\u0131k tedaviye ula\u015fmas\u0131 gerekiyor. Kaya \u00e7ifti, SMA hastas\u0131 k\u0131zlar\u0131n\u0131n iyile\u015fmesi i\u00e7in valilik onayl\u0131 kampanya ba\u015flatt\u0131. \u015eu an 1500 g\u00f6n\u00fcll\u00fc, aktif olarak kampanyaya destek veriyor. ‘\u0130LACI ALIP, \u0130Y\u0130LE\u015eEN \u00c7OCUK \u00c7OK FAZLA’ Antalya B\u00fcy\u00fck\u015fehir Belediyesi’nde tekniker olarak \u00e7al\u0131\u015fan G\u00f6khan Kaya, “K\u0131z\u0131m\u0131n 10 g\u00fcnl\u00fckken topu\u011fundan al\u0131nan kan \u00f6rne\u011fiyle SMA Tip 1 hastas\u0131 oldu\u011funu \u00f6\u011frendik. Bu s\u00fcre\u00e7 bizim i\u00e7in \u00e7ok zordu. \u00c7\u00fcnk\u00fc bu hastal\u0131\u011f\u0131n tedavisi i\u00e7in kullan\u0131lan ila\u00e7 \u00fclkemizde bulunmuyor. Biz de gerekli izinleri ald\u0131ktan sonra kampanya s\u00fcrecine girdik. Hastal\u0131\u011f\u0131n \u00e7ok \u015f\u00fck\u00fcr ki hen\u00fcz belirtilerini ya\u015fam\u0131yoruz. Kas kay\u0131plar\u0131m\u0131z yok. Bundan dolay\u0131 umudumuz y\u00fcksek. D\u00fcnyan\u0131n \u00e7e\u015fitli \u00fclkelerinde bu hastal\u0131\u011f\u0131n tedavisi yap\u0131l\u0131yor. \u0130lac\u0131n paras\u0131, g\u00fcn\u00fcm\u00fcz kuruyla 1 milyon 822 bin dolar. Biz belirli standartlarda ya\u015fayan insanlar\u0131z, memuruz. Bu ilac\u0131n fiyat\u0131n\u0131 kar\u015f\u0131layabilecek durumda de\u011filiz. Bu nedenle kampanya yapmak durumunda kald\u0131k. T\u00fcrkiye’de ilac\u0131n\u0131 al\u0131p, iyile\u015fen \u00e7ocuk say\u0131s\u0131 \u00e7ok fazla, bu y\u00fczden kampanyay\u0131 ba\u015flatt\u0131k. Bize destek veren herkese te\u015fekk\u00fcr ederiz” diye konu\u015ftu. ‘HASTALIK \u00c7OK HIZLI \u0130LERL\u0130YOR\u2019 Akdeniz \u00dcniversitesi Hastanesi’nde hem\u015fire olarak g\u00f6rev yapan Yasemin Kaya ise …<\/p>","protected":false},"author":4,"featured_media":39016,"comment_status":"","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[26],"tags":[],"class_list":["post-39015","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-antalya"],"acf":[],"yoast_head":"\n